ONE HEALTH starts an International Registry of Children with Angelman Syndrome in such countries as: USA, EU, KAZAKHSTAN, ISRAEL, AUSTRALIA, etc.
We hope we can help children to be happy and healthy!
Don't wait, take part into the registry now!
Main featchers:
- The first patient registry to bring together clinicians and parents from around the world
- Planned 2022–2023 sampling: 10,000 children with Angelman syndrome
- Strong community: the project is supported by three patient funds
- Parents’ community: over 250 active families helping new users enter data
- Independent registry: the data can be anonymised, allowing any international scientist or doctor to view it
